MS & I

Saturday, March 20, 2010

The beginning of something new…

Yesterday I finally met with my MS specialist to start my real MS medication. I was sooo excited to start. When I came home from the hospital and was off all of the steroids my foot slowly started to go numb once again and the cycle I endured began all over again. For right now I must use a walker whereever I go and a wheelchair for long walks such as the mall. In the hospital they diagnosed me with PPMS (primary progressive multiple sclerosis) this is technically the worst type of MS you can have. I did get good news from my doctor; she does not believe that I have PPMS. She said a proper diagnosis could take a few months. The doctor and her PA believe that I have had this disease since I was a senior in high school. So I possibly could have had MS all the way back in 2005! And that makes a lot of sense. They began me on a few oral meds and the MS medication is a once a week shot that I give myself. The only side effect is flu like symptoms. On one hand I am so happy to start meds so I can go back to a normal life and on the on the other hand I hate being sick. I did fine the first 6 hours after the injection and then a horrible migraine came upon me. This lasted for up to 5 or so hours. Oh do I now have sympathy for those who have these. This is the worst feeling in the world, just trying to get to my bed seemed almost impossible. My hubby tried carrying me but I was so sick I had to have him put me down so I could crawl down the stairs. Even though I made it down stairs I threw up all of my oral medication I had just taken. Can I win?! Finally tucked in my bed I was able to receive a beautiful blessing and fell asleep a few minutes after and woke up feeling a 100% better.

Hospital...12th floor and loving the mornings


  1. Wow Sam. I sounds really tough. I guess everyday will be a struggle but it is good to know that your life will be normal again one day. I'm so glad you have a blog. They are the best. You can see ours at Mostly just pictures of Jett :)

  2. Sam, you are so strong. What an inspiration you are to all. My thoughts and prayers are with you.


  3. Sam your amazing and beautiful in every way! I admire you so much!