MS & I

Friday, September 14, 2012

Yeah for me... again!

So life has been crazy and I barley have time for anything it seems like. Thus why a post has not been made forever!
But once again there is great news from the doctor that I received a few weeks ago and then not so great news that I received just today. Good news first. Once again my MRI came back great, no new lesions and it looks like nothing has changed in a year! AMAZING! I am really thankful for the medication that I am on and that it seems to be working great. As I have mentioned before there is one draw back to this medication. One of the risks of TYSABRI is progressive multifocal
leukoencephalopathy (PML), a serious brain infection. PML is a "progressive" brain infection, because the damage it causes becomes more severe over time.
  • "Multifocal" means multiple locations within the brain.
  • "Leuko" means white.
  • "Encephalo" means brain.
  • "Pathy" means disease.
  • Simply put, PML is a serious infection of the brain's white matter that usually causes death or severe disability.
    Here whats hard about PML. The symptoms are the same as an MS relapse. So you have to be really careful. So here is the bad news (but still good) I have been having really strange symptoms the past week and I kinda freaked out last night when I was not able sleep due to both of my legs "jumping" all night and not letting me sleep. I thought it would be best to be a bit more cautious and call the doctor. I went in today, and they are wanting to treat me for a relapse. So looks like my weekend will be filled with infusion treatments and then next month I will go back to the doctor to make sure the treatments worked and that there is no chance of PML. But other than this relapse this has been the best I have felt since being diagnosed, so I am very thankful for that and can only and and pray for the best.

    Tuesday, February 21, 2012

    yeah for me!...

    Went to the doctors today and received great great news! My MRI came back with no changes. They were a bit concerned that i had just had a relapse in the past two weeks but the films don't lie!
    What does this mean?
    • no changes in size of the lesions means that they arnt growing and stay the same (good!)
    • no more lesions have grown in the last 6 months (very good!)
    • the MRI was of my brain and spine (my spine is the worst when it comes to lesions) the fist MRI I have had of my spine since my diagnoses. My spine looks GREAT! No changes and just the same old stupid lesions.

    What are lesions?

    • In multiple sclerosis, lesions, also known as plaques, are patches of inflammation in the central nervous system in which the nerve cells have been stripped of their myelin, an insulating fatty protein. Lesions tend to be randomly distributed in the CNS white matter. The neurons of the white matter are responsible for sending communication signals both within the CNS and between the CNS and the rest of the body.

    So there is your biology lesson for the day!

    Thanks for all the prayers and thoughts I feel them each and everyday and feel the blessings every time I receive good new like this!!!

    Thursday, February 16, 2012

    How time passes...

    Oh wow what a year it has been! I have finally hit my one year of being on the medication Tysabri, something I never thought was going to happen considering how hard it was to find a medication to treat my progressive relapsing MS. There is just one bad thing...not only can this medication cause and brain virus called PML but also makes me prone to other serious desieses such as cancer! So guess which one I got?! CANCER. Okay so its way way worse then it sounds atleast to me, my doctors FREAKED! A simple case of melanoma on my chest from a mole that i swear I have had always and forever. Good news is that I had a great surgyn who operated fast and got it ALL!