So finally after being stared at and being asked if I have been drinking I have decided to join the M.S. physical therapy clinic at the University of Utah. This is a program designed just for M.S. patients. Before joining the program I needed to complete a series of tests. This is the first part of swallowing my pride. All the testing is done by U of U students who are about my age. What I wouldn’t do to just be able to switch places with them, to be in school with others my age and getting an education. The second part of swallowing my pride is that I am the youngest person EVER to join. So I go to P.T. with 60+ year olds and try to see the bright side of this whole experience even though it’s a little hard to swallow.
Wednesday, September 21, 2011
It is time for a good update that came about one month ago.. I started a treatment called Tysabri after my last MRI came back showing more lesions meaning the medication was not working. So it was on to the third treatment. A once a month 2 hour infusion of the medicine Tysabri. After six months of being on the treatment I was in for yet another MRI and blood tests. First my blood work came back looking great, seemed that everything had doubled! (Except for my vitamin D levels). Then the MRI report saying that nothing had really changed since my last MRI (that’s good) and that they currently see no active lesions (that’s good too). So this is the first time in my year and a half of having M.S. that I get to stay on a medication longer then 6 months. I look forward to seeing what this treatment can do for me and hope for the best that it can make me feel better.